Unwell Women

Misdiagnosis and Myth in a Man-Made World

Elinor Cleghorn

23 min read
1m 28s intro

Brief summary

Unwell Women traces the long history of how medicine has dismissed, misinterpreted, and harmed women by treating the male body as the default and female bodies as unstable. It argues that better medicine begins when women’s testimony is treated as essential evidence.

Who it's for

This book is for anyone who has felt dismissed by the medical system or wants to understand the historical roots of gender bias in healthcare.

Unwell Women

Audio & text in the Readsome app

Introduction to the Gender Gap in Medicine

We often view medicine as an impartial science, a field where doctors use evidence to solve the mysteries of the human body. We expect our aches, fevers, and pains to be assessed without prejudice, regardless of our gender or skin color. However, medicine carries the weight of a troubling history that has often absorbed and enforced divisions between men and women. For centuries, the male body has been treated as the default standard, while the female body was viewed as a defective or inverted version of it.

This historical perspective, rooted as far back as ancient Greece, suggested that a woman was entirely ruled by her reproductive biology. The uterus was seen as a mystical organ that influenced every possible physical or mental disorder. Author Elinor Cleghorn, who lives with the autoimmune disease lupus, notes that this legacy has created a gender problem in modern healthcare. Even today, medical myths about how women experience and express pain continue to influence diagnosis and treatment. Women are frequently told their physical symptoms are emotional or psychological, leading to delays in care and a pervasive sense of being disbelieved by the very professionals meant to help them.

The impact of this bias is not felt equally by all women, as systemic issues are heavily magnified by race. Black women face a double burden of medical sexism and structural racism that severely impacts their quality of care. A long-standing, false belief that Black people feel less pain still results in Black women receiving less pain medication and facing higher rates of maternal mortality. In both the United Kingdom and the United States, Black women are significantly more likely to die from pregnancy complications like preeclampsia because their reported symptoms are often dismissed or ignored.

The gap in medical knowledge is also a direct result of how research has been conducted over the past century. Until the 1990s, women were excluded from many clinical trials because researchers claimed their fluctuating hormones would make the data too complicated. This exclusion has left doctors with a lack of information on how diseases like heart disease or HIV manifest specifically in female bodies. Consequently, conditions that predominantly affect women, such as fibromyalgia, chronic fatigue syndrome, and endometriosis, remain under-researched and frequently misunderstood. Endometriosis takes an average of nearly a decade to diagnose because its debilitating pain is often dismissed as a natural part of being a woman.

Despite these systemic challenges, there is a long history of women fighting to reclaim their health and demand better treatment. From the suffragists of the early twentieth century to the grassroots activists of the 1970s, women have consistently challenged the idea that they are unreliable narrators of their own bodies. By sharing their personal stories and demanding better research, these advocates have made medications safer and pushed for the recognition of invisible illnesses. True progress requires medicine to move beyond seeing women through the lens of biological myths and to start listening to them as human beings whose testimonies are the key to solving their own medical mysteries.

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About the author

Elinor Cleghorn

Elinor Cleghorn is a feminist cultural historian and researcher who specializes in the history of women's health and feminist visual culture. After receiving her PhD in humanities and cultural studies, she was a postdoctoral researcher at the University of Oxford, where she worked on an interdisciplinary medical humanities project. Cleghorn contributes to her field through critical writing, lectures, and books that explore the intersection of medicine, myth, and the female experience.

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